A conversational YouTube video featuring Robert Whitfield MD and a patient/advocate discussing breast implant illness (BII). The speaker recounts personal experiences—media exposure after appearing on the Today show and writing the book Treasured Chest—describes difficulties being believed by surgeons and diagnostic failures (missed rupture on MRI), and calls for stronger Australian regulatory warnings (a TGA black-box warning like the FDA's). The clinicians discuss system differences across countries and diagnostic/etiologic uncertainty (including ALCL as a consideration).
The best thing I say that, you know, my number one redeeming quality is I always had no problem telling people no.
Okay, yeah. Amazing. Oh, my gosh. And I mean, let's just talk about, if we can, how the system is set up. There are literally. And, you know, ever since I wrote this book, Treasured Chest, it started with me going on the Today show, telling my story two weeks after surgery. And Dr. Tan came on the Today show with me, and my inbox was just flooded with women joining the dots, realizing that they had breast implant illness, expressing that they felt medically gaslit. Cause there are a number of, you know, people that practice in this industry that sweep this conversation under the rug or upsell kind of the secondary surgeries. Would you like fries with that? A lift or a fat transfer? So these millions of women across the world can't afford to be seen. And I, you know, I think it was two years that I was waiting to save up for the surgery and then to be triaged because there was no rupture detected. But indeed there was. And six surgeons in an MRI said I was fine. You know, medicine isn't a perfect science, but indeed, women are intuitive. And the surgeon woke me up from anesthetic and said, you know, you were right. The poll was exactly where you were pinpointing it to be. So I'm just concerned every day, and I lose sleep over women that are still coming to me day in, day out, saying, help. You know, what do we do about that? I mean, first of all, in Australia, we need a TGA black box warning the way the FDA has one. We don't have one of those in Australia.
Oh, okay. I didn't know that. Well, a couple things. I don't know that certainly in our system, and I've only worked in here in the United States system, and then I've worked in the UK system, in the nhs, very different systems. Obviously, this is going to always typically be put back in the patients and the plastic surgeons to figure out whether it was from ALCL or what have you.
