Judy Heumann, Author and Disability Rights Leader Discusses Career and Film Crip Camp

1 Sept 2020 · 47 min
Episode

1 Sept 2020 · 47 min

0:00

In this episode of Disability Matters, host Joyce Bender interviews disability‑rights legend Judy Heumann. The conversation opens with promotion of the Netflix documentary Crip Camp and Heumann’s memoir Being Heumann, including details on accessibility (audio‑description, Bookshare, Audible). Heumann recounts her early life—polio at 18 months, denial of school admission in 1950s New York, home‑instruction, and her parents’ relentless advocacy that helped change school policies. She describes how those formative experiences shaped her lifelong activism and led to the writing of her memoir with co‑author Kristin Joyner. Heumann reads a vivid passage from the book about a childhood encounter in a wheelchair, illustrating the medical‑model stigma of “sick” versus the social reality of disability. The interview then moves to broader movement history: the cross‑disability coalition, the poverty‑disability link, and the pivotal Section 504 regulations. Heumann explains the 27‑day occupation of the Health, Education, and Welfare building in San Francisco, organized by the American Coalition of Citizens with Disabilities, and how the protest forced the government to sign the regulations. She highlights the support of the Black Panthers, especially Brad Lomax, who supplied food for the occupiers. Heumann also honors fellow activist Marca Bristow, describing her accident, transition from nursing to independent‑living advocacy, and her role in founding Access Living. Throughout, Heumann stresses the importance of collaboration across movements, ethical disability‑run organizations, and self‑respect. She offers a message to young (and newly disabled) people: disability is a source of strength, demands advocacy, and requires collective action. The episode closes with sponsor acknowledgments, a reminder of the ADA’s 30‑year anniversary, and invitations to future shows.

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