004 How to Survive the Lyme Bomb, with Philip & Emilee Gamache

6 Apr 2015 · 39 min
Episode

6 Apr 2015 · 39 min

0:00

In this episode of the Lyme Voice podcast, hosts Aaron Sanchez and Sarah Satchis (joined by co‑host Lincoln) sit down with Philip and Emilee (Emily) Gamache to discuss their long‑term battle with Lyme disease. The conversation begins with a promotion for the book Little Bite, Big Trouble, which uses a bird‑family metaphor to help families articulate loss and stay motivated. The Gamaches recount Emilee’s early health struggles, the vague tick exposure, years of misdiagnosis (including a provisional MS diagnosis), and the eventual discovery of Lyme and co‑infections through a live blood analysis and CD57 testing. They describe the challenges of finding a knowledgeable doctor (Dr. Hillary Schlinger), navigating negative standard Lyme tests, and dealing with costly, experimental treatments. The episode delves deeply into family dynamics: the strain on Philip as a caregiver, the logistical nightmare of meals, laundry, and childcare, and the emotional grief of losing once‑normal activities. Practical coping adaptations are shared—emergency freezer meals, board games, moving a bed into the living room, indoor recreation, and modifying daily routines to conserve energy. Financial pressures, including selling a house and a retiring specialist, are mentioned. Throughout, the hosts emphasize community support, encouraging listeners to share tips, visit the Lyme Voice website, and join the Facebook group. The episode ends with a standard medical disclaimer.

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