008 Lyme from a kids perspective

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Sneaking the goldfish.

Alright, let me ask you this, guys. There's probably another 10-year-old or 11-year-old kid out there. What would you— and maybe they're just finding out they have Lyme. Is there something you could tell them to encourage them?

Eat one apple every day and then you'll feel fine.

Not to overdo it?

Yeah, like I know it seems like, I think one thing that I'd like to say to other people who have Lyme, older people, younger people, doesn't really matter, is that I know it seems like it's gonna take forever and maybe it will take like 5 years, maybe it will take 2, maybe, maybe it'll take 6 months. It can get over fast or slow, but it could take about 5 years in your lifespan. It's not that long, don't get depressed.

Yeah, and if you're only 10, it's not that bad, If you're born with Lyme, it doesn't start acting up until you're like 5, right?

Well, it depends.

Congratulations, Lyme Fighter! Today you had the courage to open your eyes and face another day. Welcome to Lyme Voice. This show's purpose is to help you put the puzzle pieces of Lyme into place. Each episode is designed to inspire, educate, and encourage you on your Lyme journey to wellness.

Together we will fight.

Together we will heal. Together we will live. Here are your hosts, Aaron and Sarah Sanchez.

Hello everybody, welcome to Lion Voice. I'm your host Aaron Sanchez. Today we have a special episode. We wanted to do a kid episode, so we actually ended up interviewing Grant Getty, Nathan Sanchez, and Lincoln Sanchez. Nate and Lincoln are my sons, and Grant is a family friend. Uh, they— Lincoln Deacon doesn't have Lyme, but we just thought he was pretty cute and we wanted to put it on. But Nate and Grant both do, so we're gonna get their take on what it's like to have Lyme as a kid. So, but before we go there, I wanted to tell you about an opportunity Sarah and I came— what it is, it's the Omega Institute out in Rhinebeck, New York, June 26th and 28th. What they're doing is a Lyme conference. The speakers are gonna be Dr. Richard Howartz from Under Our Skin, Dr. Talan Franz Scott from Dr. Tom's Tonics, also has done some work with Dr. Hardwitz, and they're both going to be speaking. And then also Katrina Makris from Limelight Radio. So we're really excited. If any of you would like to check that out, it is www.eomega.org. Again, that's www.eomega.org. So if you guys, anybody's going out there, uh and plan to attend, drop us a note. We'd love to meet you and put a face with some of those names. Before we get on to the interview, one thing I wanted to do is read our iTunes review of the week. This one comes from iTunes tag Mid-30s. The title reads, Open, Honest, Thoughtful, and Hopeful. 5 stars. I appreciate how the episode starts by saying, congratulations, line fighter. You had the courage to start another day. How true. You guys give my family a perspective, a positive activity to do together, listen to your podcast. 4 out of 5 of us have Lyme, and information sharing that you foster has been wonderful for us. Thank you. Wow, thank you. That's a wonderful, um, review. Also, I'm so sorry to hear that 4 of you have Lyme. Um, that's a tough situation. So we will be praying for you. Hopefully next week I can read your iTunes review. If you have not had a chance to do so, please look us up on iTunes under Lion Voice and leave your rating and review. It means a lot to us. It helps us get up onto the top of iTunes charts and helps get the word out. Also, if you would like another way to help support us, you can visit our website, lionvoice.com. On there you're going to find some ways that you can help support us. We have some products for sale that we receive a small commission, and then also a donate page. That kind of stuff just helps cover the costs of, of the show as well as helps us get to conferences and stuff like that. Okay, one other thing. We've decided to pull back from doing once-a-week shows down to twice a month. We wanted to try that, especially at the beginning here on the— with iTunes New and Noteworthy. It's real important to have a good start there. But it is— we're still in the middle of our own Lyme fight, and in order to live, we— and in order to heal, we're just gonna have to pull back a little bit. And hopefully when Sarah's feeling a little better, we can return to the 4 times a month. With that, Let's get to the interview. I hope you guys enjoy it. It was a lot of fun to do. Let me know what you think and if this is something we can do again. We'd love to hear your input. And here we go. Okay guys, say what? What is your names?

Nathan.

Nathan what?

Sanchez.

And what's your name?

Grant Giddy.

And how do you know each other, Grant and Nathan.

And our parents knew each other.

We lived next to each other. Um, um, Sarah Sanchez and Aaron Sanchez. That are talking right now. Yeah, Adam and Heather Getty.

And we have known Adam and Heather Getty for a lot of years. Uh, we have matched kids actually. They ended up winning with one more than we did, but we matched kids the whole way. So Grant and Nathan are about 8 months apart.

He's 12 and I'm 11.

I'm almost 13.

Yeah, like almost 2 years.

Grant is Kaya's age.

Almost 2 years.

Obviously I don't know children's ages, they keep changing, so how are you supposed to keep track if you guys keep changing it every year?

So Nathan is 10, I think. Oh yeah, he just turned 11 last week. Yeah, and Grant is almost 13, and unfortunately for both of them, they both have Lyme. And so they're here today to talk to us just about Lyme and what it feels like as a kid to have Lyme. Why don't you guys start by telling us about the YouTube channel that you're gonna work on this summer?

Oh yeah.

Okay, so we're starting a YouTube channel and it's gonna be called, um, Limecraft.

Limecraft?

Yeah, because Minecraft and Limecraft. Yeah, and then we're gonna plays on servers and stuff.

Yeah.

And we're just going to be mostly doing it during the summer and a little bit, maybe like on like once a week.

So now tell me, why did you pick the name Limecraft?

Because we have a lot.

Nathan came up with it.

So it's a lot because we have limes and craft is like Minecraft. Yeah, it can't be, um, Craft Lime. That sounds weird.

It does. Yeah.

Or Mine Lime.

That's a good word too.

And while you're playing this game, do you guys ever plan on picking your nose?

Really? That's rude.

Uh, no.

Edit that part out.

We will.

It was just messy.

Dang it.

Okay.

All right, let me tell you some lime facts for kids. All right, fast facts. 25% of all Lyme patients are children.

25?

That's it?

25%.

So 1 out of 4.

1 out of 4. 50% have no history of tick attachment, and less than 70% of kids develop a bullseye rash.

Well, let's ask you guys those questions. Did you ever have a bullseye rash?

Nope. And I never had a tick bite.

You never saw a tick?

I've never had a tick. I've, I've had tick bite, but not limes.

Yeah, and so let's see, Nate, as far as we can tell, has probably had it from birth. He's had a lot of symptoms from birth, we just didn't really know what they were.

But Grant is different because Grant, for you, you were fine when you were born, but about 5 years ago when you guys were living in Maryland, uh, what my mom thinks is, um, she thinks that she might have gotten it as a kid and then might have had it and it just didn't start showing symptoms until we began to move when I was around 7 because of the stress levels on me and everybody when we were moving. And like, as soon as we got to Maryland, all my symptoms started showing up almost right away.

Oh yeah, it was almost immediately, almost immediately right after the move.

Like, yeah, it— like, I wasn't even outside all that much. It was snowy, so there could have been no chance of a tick bite.

Right, it was in the winter.

It was right in the winter. And then a week after we moved there, about a week or so, I started having headaches and then moved on and we were living at our grandparents' house and then we moved to a different house and I started having sharp chest pains. It'd just be like 2 seconds, but it'd be really sharp stinging.

Right.

Yeah.

Chest pain.

Yeah.

Once when I was camping.

That's mine.

That's No, no, it was my chest. And then, um, so I was— went camping and my chest was stinging and burning, but I couldn't— and I couldn't sleep on my own. Every time I slept, it was only for about 5 minutes and then I woke up again. And then I didn't sleep the whole night, but the next night and the night before that, I was fine, right? It was just that one night. And as soon as I got in the tent, it started happening, but I wasn't Anything else?

Yeah.

Now one thing that is hard for parents to understand, because you know kids sometimes complain about things.

Yeah.

So sometimes it's hard for us parents to understand what you guys are talking about. So one thing you guys can remember is to use lots of words. You know, like when Nate, it helped me and mom understand your symptoms when you used lots of words and you told us it felt like burning and it kept coming back and and that kind of thing, because it is hard with Lyme. Because really, guys, no one else except for another Lyme patient is gonna know what you're feeling and know how it feels.

Yeah, I actually have a little comment on that.

Um, sure.

In Maryland, I was having hearing problems in my left ear. I went to the ear doctor, uh, they were all like, no, you're fine, there's nothing wrong with you. And mom actually didn't believe me, and she actually— a lot of my symptoms, she was questioning just because she didn't know a lot about it at the time. And then we moved back and she started reading about it, and she told me the other day that's when she really started believing about the symptoms.

So yeah, and you're right, Grant, and that's the hard thing about Lyme sometimes is you don't see blood, right? You guys, if you got a cut, we know what to do, we'll go get you stitches. But when we show up to the ER and there's no cut, unfortunately The doctors don't know what to do with us. So I mean, Grant, you experienced that where you went to doctor after doctor, multiple doctors. Yeah, Nate, you've done the same thing. Yeah, when me and Mom have been taking you since you were— when you were younger, we did a lot more because you remember when you were younger, you had a lot of digestive issues where your bathroom troubles—

you're embarrassing him.

Oh, sorry, you might not want to talk about I think, I think, I think, I think— It's okay.

I think she's dying.

I know.

Okay, the point is, no more poop talk.

No more talking about poo.

We talked about poo on the last episode. We won't even get into colonics. You guys don't even want to hear about that.

Mm-mm.

Right.

Your face. His face. I'm sorry.

I'm sorry. Hey, you know what though, guys? It is a little embarrassing sometimes. It's hard to talk about this stuff because you shouldn't have to talk about that kind of stuff with—

despite if you talk about me, um, being constipated.

But you were too rude. That was rude. No more, no more talking about your accidents. The point is, guys, it is sometimes hard because you guys don't know how to even describe the pain that you're going through, right? Has it been hard to use lots of words and describe it? Yeah, sometimes it's easy to just not use your words and get frustrated. Have you ever been like that?

Yeah.

Were you frustrated at your sickness? How about you, Grant?

Yeah, it has a lot. Um, I think it was most— for the most part, really frustrated in Maryland. Yeah, because, um, I was having some problems and I went to like 5 6, 7 doctors. They're all like, you're fine.

Yeah.

And then my mom was slightly believing them in the fact that kids do exaggerate sometimes. It's a thing. And so I went to a lot of doctors, nothing really happened, and we didn't really start, uh, treating Lyme until we got back in New Mexico. Yeah, we didn't really start trying to treat it very much, um, for, for a few years until we came back. Well, and I went gluten-free.

You didn't actually have a diagnosis, like you hadn't actually been tested until this year. So really most of your stuff has been in the last 12 months, right?

Most of it, yeah.

Yeah. Yeah.

Now how does being back before we didn't know what was causing you guys to be sick, and now you both have positive diagnosis, how did that make you feel when when your mom and dad told you, hey, you have Lyme? What are some of the thoughts that came through your mind?

I was just like, okay, well, it won't get any— it will get worse, so now I know what it is, so I could heal it.

Yeah, we were kind of already treating it like Lyme, and we just couldn't get any doctors to do anything about it since I wasn't diagnosed with it yet. Yeah, but we, uh, we— I was diagnosed recently, so Now we got a doctor that I'm doing stuff for, but at first I was relieved because, well, now they can get rid of the stuff, right? You know what I have, right? And second, that means, dang it, well, now I have Lyme disease.

Yeah.

And I know it's a hard thing to treat and it takes a long time.

Yeah, yeah, for sure.

So let's talk about those— the times where you guys feel really crummy. Because Nate, you've had times like that.

Yeah.

And Grant, I know from talking to your parents, you've had times like that.

And, and let's make a distinction here, because kids get worn out and stuff. They end up having days where they're not feeling well. But Lyme pain is just different. It seems to drag them down quicker, and they stay down for longer.

Yeah, because Nate and Grant are some the most energetic boys that I've ever met. And if they're not— I mean, we had to calm them down from tickling and wrestling to pin them down. We let them have their moment so they get it out. Now they're quiet. We may have to take a few more breaks, but when they're not acting like that, it's a good indication for me and mom to say, hey, you know what, this is not normal. Nate is usually energetic, and all of a sudden he's down for 2 and 3 days at a time.

Yeah, so explain— yeah, explain what a bad day feels like.

Yeah, that's a good question.

Well, I can— well, you just— you— I usually have headaches, like really— like not like just a normal, oh, I didn't drink enough water, I have a slight headache. Like, yeah, pounding, pulsing migraines and stuff. And like, you don't want to get out of bed, but yeah, that's a really bad day. Usually it's just Just general crumminess. Your body hurts in multiple places, joints. You have usually a slight or medium headache. It's just, you just, you feel bad.

Yeah. So what do you end up doing on days like that? Do you just go play anyway, or do you end up staying on the couch? What do you guys usually do for when on days that you're not feeling so great?

I usually take a bunch of painkillers.

Yeah, your mom has you on a bunch of herbal stuff, herbal painkillers.

When I have headaches and stuff, I take ibuprofen, right? Something like that. Then I rub this stuff on like muscles and joints called Topricin cream that we have.

Does it work for you?

Uh, usually it works. It works really well for my back. Uh, that's another thing that I think Lyme is different from normal injuries is that injuries that should heal don't, right? I injured my back 2 years ago, and then we went to the chiropractor a few times, like, oh, you're fine. Now it's resurfaced, and I was using heat packs and stuff. We're seeing a person about it, and it's getting better, but it's just kind of a pain that's just kind of always there. Yeah, it shouldn't be. That should have healed a long time ago.

Yeah, and it's not normal for a 13-year-old 11-year-old or 12-year-old to be in pain from a back pain. That's usually when you get old and fat like me.

Yeah, Nate, what is a bad day like for you?

Um, well, I don't think I've had a bad day since like February.

Yeah, you've had a really good spring.

The fall was bad.

You missed a ton of school last fall.

I think I missed 4 weeks.

I remember during, uh, during winter break I was having a sleepover here and I think it was we woke up on Sunday morning and I was about to go home and Nate was just on the couch. He was just lying back and just like, I don't feel good, I don't feel good.

Yeah.

And he was just like, just so dragged down, he like just couldn't say anything. He just, I don't feel good, and that was it.

Yeah. Mm-hmm.

Yeah, and usually I don't have a bad day unless like I go like to Tomorrow I'm going to the zoo, and I'll like— probably when I get— and I'm having PE, and probably when I get home I'm probably gonna lay down and watch some TV. But on a regular school day, I get back and I'm fine.

Yeah. But so would you say that on the days that you know you're gonna do something big, like go to the zoo— so do you— are you saying that you, you're planning to, to rest after? That's a good plan.

Definitely.

So you guys kind of make that— so Is that kind of like your general plan? When you know you're gonna go over here to play with Nate and you guys go riding bikes, so you already are planning for a quiet time to rest and recover?

Usually.

Yeah.

Yeah, and that's just something that I think even Nate has come to understand even in the last couple of years. 'Cause, you know, Grant has a lot of pain and fatigue issues and Nate's are more fatigue issues. He really does not have a lot of the pain stuff. It's fatigue.

None of the headaches.

Except for when I have migraines, because once I had a migraine off, um, when we went to Arizona. I had a trip. We had a trip, went to Arizona, and I was sleeping on the ground of the floor of the car, and then I went home and I had the worst migraine ever, and it just As soon as I was fine, and then as soon as I got out of the car, I stood up and then it just happened.

Yeah, I actually went with Nathan on that trip and I felt horrible.

No.

Yeah.

No, that was when we went to see my mom's treatment. Oh, that was when we went out to Phoenix. Was a little sick after that.

Yeah, well, we did go, I did go with Nathan and my mom, Sarah, and we all went to Arizona to a clinic And I remember getting out of the car and I walked in and I was actually feeling fine. I was putting away stuff and I walked out to the living room and then I was really dizzy and I suddenly had a headache. All my joints hurt and I like, I just sat down on the couch and I said, I gotta lay down for a few minutes.

Yeah.

Yeah, on the way back of that trip, I was about to throw up and then I slept in the front of the seat and then I don't remember anything until the next morning.

Yeah, they're talking about a trip that Heather and I took out to Scottsdale last fall. I have a friend Heather who has been diagnosed, but she didn't have a diagnosis last fall. And when we drove Nate out there, they do a lot of nutritional testing and they have just a very broad system of tests that they use. And I wanted Nate to get tested through Shea Medical because they did such a great job of helping me get on top of my system symptoms and teaching me and educating me how to try to live with— live the best life possible with this new ingredient. So the 4 of us went out there, and it was so hilarious because, well, we planned— all 4 of us have Lyme. And so Aaron actually flew out there. I could drive out there but not back, and so he flew out to drive us home. And we'd only been gone for 3 days, and we're all— yeah, you guys were just falling apart because everything hits you differently. Yeah, like normally kids don't, you know, normally you don't have to worry about car sickness and elevation issues.

And yeah, I don't know if you guys knew this, but sometimes, uh, with Lyme patients, people with Lyme, when you change barometric pressure, so like when you fly an airplane or go up and down in elevation, it really gives your bodies a work through. So it, like, the Lyme messes with your head almost. So that might have been why you were feeling dizzy and carsick. So a lot of times we've noticed with Nate, he gets carsick easier, especially on longer trips, because we're going up and down elevations. And for some reason, that seems to mess with the Lyme and makes you feel even worse.

I remember a hunting trip I took with my dad and my grandfather, um, I think it was before last year. Um, we went out, he was at an elk hunt, and one of the days he went out with a buddy who was also there, and we stayed home and me and my grandfather went out later and we shot some squirrels and stuff. But that morning, uh, I was really lightheaded and dizzy because of the higher pressure.

So, all right, tell me the worst part about having Lyme on a day-to-day basis.

Migraines.

Having a lot of migraines.

I think just the constant soreness and pain, like even if it's not like a lot.

It's always there.

It's just always there and it's just annoying.

Yeah, I'm with Gracie.

And you just get tired of it eventually.

Yeah, once—

Just constant soreness.

I like running a lot and I ran a 3-mile run for the zoo and it, um, like last, last spring, right? And I was fine then, so, and I wasn't sore at all the next morning. I didn't— I wasn't anything. And then at PE, I ran, um, a half mile, and I was sore for a long time.

Yeah, yeah, I can relate. That same year, just a few months before, um, I had done a shamrock shuffle here Mm-hmm.

That was a 3K?

Yeah, it was a 3K. So we're, um, we ran across this thing and I was already out of shape and I came across a thing, I walked across and I was feeling good, I drank some water and I fell over. I just laid down in the grass and then we came and picked up and then we went to church and then I was feeling good because we sat down during the service, and then I got up and ran around out back afterwards, and I shouldn't have done that. I felt horrible for quite a few days.

Okay, you guys are bringing up a really good point. It's really confusing for parents, especially if they don't— aren't familiar with Lyme. It's confusing for parents or any family member to see someone be up and functioning one day, and then the next day they can barely walk. Right? Do you guys experience that?

Yeah, it's not so much to barely walk, it's just they think they don't want to walk.

There you go.

Yeah, yeah, like you can move around and like do your school or do chores or something like that, you just don't want to because it hurts. Because it hurts to do it.

Well, I never even want to do chores.

Yeah, that sounds like a pretty good excuse to get out of chores. I don't know.

You still have to do them. Yeah, it hurts.

Yeah.

So tell us what, what, uh, foods you're eating, what foods you're not eating.

Gluten is bad.

Yep. Just there.

Do you miss donuts and bread and all that kind of stuff?

Who doesn't miss donuts and bread, all that stuff? And I'm actually, uh, the doctor I'm going to said that, to quote her, gluten and sugar are evil, just get them out of your diet. Like, what she said, and I think I agree with, is it's okay to have it once in a while, like have a piece of cake at a birthday party or have a donut or go out, like, I don't know, you can do like once a month or something. But at this point, like when you're getting treated, like maybe after you're done, do that. But right now you just want to like stay away from as much gluten as possible.

Yeah, and dairy. You have to I try to stay away from dairy, but like every once in a while is fine. Like a bowl of cereal every week.

Stay away from gluten, I think. And now, um, just try to stay away from sugar.

Yeah, Nathan has been gluten-free for at least 5 years now, but Grant is just new to gluten-free, right?

Yeah, I tell him what to do.

Yeah, sure, Nathan. Uh, sort of. I've been trying to go off off and on with gluten for the past few years actually. I've been trying to get off. I just don't really did it, but I just felt so bad after my sister's birthday party. After I ate some cake there, I was like, I'm never eating gluten again.

And Nate won't touch it. Nope, he won't touch it.

I won't touch it.

I don't dare.

Don't touch it.

Like, when, when the, the first year, I used to sneak in some Goldfish a lot, a lot, a lot.

Confessions of an 11-year-old here, huh?

And then, but now, now if I even eat one Goldfish, I'll probably lay down for about an hour.

Yeah, we have proof on— we have proof on record. Book him!

Sneaking the Goldfish.

All right, let me ask you this, guys. There's probably another 10-year-old or 11-year-old kid out there. What would you— and Maybe they're just finding out they have Lyme. Is there something you could tell them to encourage them?

I know it seems like—

Well, not every day, and then you'll feel fine.

Not to overdo it?

Yeah, like, like I'm not going to the zoo for about 3 to 4 hours, and then I'm having PE and I'm playing kickball, which that's a lot of stuff. And then on the way back, I have to ride in the hot, bumpy bus. Yeah, which would suck.

And see, you know what though, here's the thing though, I think normal kids, those things don't wear them out.

Nope. Well, it, it probably would because it's the zoo.

Like, anybody's tired after they walk around the zoo, but like, they shouldn't be in pain.

I never got tired. I don't remember ever getting tired like that as a kid. Not the way you always wanted to go and do more.

Yeah.

Um, yeah, I want to, but I can't, right?

And I see that in you. You can tell. Did I tell you guys that I met a lady who was a retired principal not too long ago? And she was a principal of a school up in Michigan, an elementary school, and she said that her students who had Lyme disease missed far more school than any other illness. Yeah, she said it was just really hard for them to be in school. And I know both of you guys, school's been hard We are like years into school being really difficult for you guys. What is the fatigue part of that?

No, it's brain fog.

Yeah, because like you sit there—

like, I'm ADHD, and so I'll sit there and then like normally I have a hard time concentrating, but with the Lyme added in, the brain fog and fatigue and stuff, and you just sit there. And I once sat there thinking about this one math problem, not even writing anything, just sitting there for almost an hour. I just like couldn't do it at all. Yeah, now I don't have that problem as much.

Yeah, but yeah, and I do— I can do math easy, like I'm really good at math, but writing I can't do, right? Because it's just— but it's just—

can't. Yeah, you're right. Yeah, we've done a lot of testing with Nate 'cause he's had a hard time really writing and reading.

But I got a lot better at reading. I can read now.

Yeah, you are. It's just taken you a long time. And one of the things that is in the future is we're about to have a, do a neuropsych eval for him just to kind of see if we can piece together some learning stuff for you.

I think one thing that I'd like to say to like other people who have Lyme's, older people, younger people, doesn't really matter, is that I know it seems like it's gonna take forever, and you know, maybe it will take like 5 years, maybe it will take 2, maybe, maybe it'll take 6 months. It can get over fast or slow, but it could take about 5 years in your lifespan. It's not that long, don't get depressed.

Yeah, and if you're only 10, it's not that bad, like, because if you're born with Lyme, it doesn't start acting up until you're like 5, right?

Well, it depends. Everybody's different.

Well, I think you guys are about done. Mm-hmm. You're about done. You guys are awesome.

Okay. Yeah.

Strong, young, handsome men. Great attitudes. Some days you don't have so great attitudes. How do you talk yourself out of that?

I don't.

Or does your mom and dad talk you out of it for you?

I think the mom and dad talk me out of it.

Sweetie, do you have any more to say?

Tell me, you know, here's one of the problems that some parents have is they have to have their kids cooperate with treatment, like taking your—

I've been taking some seriously nasty stuff that you have to hold in your mouth.

Taking drops.

It is bad.

Nate, tell us about your supplements that you love to take.

No, they suck.

What's the worst part about them?

They taste bad. They should just have shells on every single one.

You like the ones with the capsules? Yeah, sometimes, but sometimes you don't.

I know there's something that my mom would probably say is, um, she wishes that there was just one super pill that you could take. Yeah, she's taking 13 pills in the morning. Yeah, she takes pills at lunchtime, dinnertime, and before bed. And I'm taking pills in the morning and the evenings.

Me too.

I know, it'd be nice.

You should invent the super pill for Lyme.

Nice.

Yep, got it. That's your job from here on for the rest of your life. I want to discover the super pill for Lyme.

What?

Okay, so for Minecraft you could do a mod, which is like inventing something, and you can like get limes if a tick bites you, and then you can make a super belt.

Nice. Awesome.

All right, anything else you want to say?

Nope.

Thank you for being here, guys.

Don't lose hope.

Don't lose hope.

Go play.

Okay.

And watch our channel when it comes out.

Yeah. All right, thanks, guys.

It's coming out and Grant will fail.

Okay, okay.

Today we have Lincoln James Sanchez. Lincoln James is our youngest child. He is— how old are you, buddy?

6.

6 years old?

Yeah.

How long you been 6?

I don't know.

You don't know?

Yes, for 6 years.

6 years. You've been sick for 6 years. Good job. Okay, so here on Lime Voice, we like to talk about our fight story, our heal story, and our live story. Okay, so you— and, and we're always talking about, uh, Lyme a lot of time. What do you think Lyme is?

Uh, I do not know.

You don't know what Lyme is?

Nope.

Have you heard us talk about Lyme?

Yes.

Yeah?

I just don't— it's called Lyme, but I just don't know what it does to you.

You don't? Does it, um, does— do you think that Mom feels sick because of Lyme? Does sometimes she say she doesn't feel good?

Yeah, because she got bit by a tick. She got bit? That's That's what made her get Lyme's.

What did?

A tick.

A tick?

That bit her.

Oh yeah? Where do you think it bit her?

Like on the arm or something.

Yeah? Does it hurt to get bit by a tick?

Yes.

It does? How?

I do not know.

Have you ever been bit by a tick?

No.

Have you seen a tick?

Yeah, on video, on the real life video.

Oh yeah, but not in person, huh? Cuz we don't really have that many, many, many ticks here in New Mexico, do we?

Yeah, cuz I saw they're orange and black sometimes.

Yeah, yeah. Okay, so we, we figured out that, that Lyme makes Mom sick sometimes, right? Yeah, yeah. And, uh, do you know anybody else that has has Lyme? Who else?

Uh, someone in my last year class.

Oh yeah?

Uh, someone in my last year class, Mom. When I— do you know that girl that— her— you know that girl that has Lyme? Is that— that we saw at the end of the performance?

Yeah, yeah, Mommy's friend that went out and got treatment too?

Yeah, but you know, I actually know her girl.

Yeah, you're friends with her at school, huh?

And no, I don't really play with her.

Yeah, but you know who she is, right? Yeah, yeah, yeah. That's awesome. So someone else's mom has Lyme too. And how did that make you feel?

Uh, actually, I don't know.

You don't know? Well, sometimes it's nice when we have other people that we know right, that have the same thing as you do. So like sometimes it's nice to play with somebody that likes to play basketball too, right, or likes to run too. And sometimes it's nice to play with someone who knows what it means to be— to have Lyme, right? Yeah. And Lyme is not a good thing, right? Yeah, yeah, it's kind of makes mom sick a lot. And, and, and who else? Does anybody else in our family have Lyme?

Nate.

Nate does, huh? And does— so when you see— so sometimes Nate is— he doesn't feel good, right?

Yeah.

And he has to stay on the couch and, and he can't play with you. How does that make you feel when, when Nate is too sick or grumpy to play with you?

Yeah, and then I just go play with her. And then if she's too grumpy—

oh, you go play with your sister?

Yeah, but she's too grumpy, then I will just like do my own thing.

Oh, I see. Yeah, yeah, yeah. Okay, so, uh, we, we talked about Lyme and how it makes Mom sick and how you like to, to play with your sister and stuff like that. And what are some good things that, that Mom does and that Nate does to get better? Because this is a part where we talk about our heal story, how we get better.

They take medicines. Like Nate takes— if he coughing a lot, he just takes cough drops.

He takes cough drops. Yeah. And does he take lots of vitamins?

Yeah.

Oh, and does Mom take you— make you take vitamins?

No. Well, she makes me take two. Once she take— she made me take two vitamins and then two vitamins again and then three vitamins.

Lots of vitamins, huh? Is it fun to take vitamins?

Well, those are actually— those ones actually taste good.

Also, some vitamins Vitamins taste good.

Yeah, like the gummy ones.

Oh yeah, don't hit the mic stand. Okay, that's okay. Now, so we take our vitamins. What else does Mommy do? Does she juice?

Yep.

Have you ever tasted her juice?

Yes.

How does it taste like?

Good, but I just like the one she made a long, long time ago. That one was really good.

Why was it so good?

She put like like fruit in it. Fruit, just not like that much vegetables.

Oh yeah, you like the ones with more fruit in it?

Yeah.

Sometimes mom takes a bunch of vegetables and then she takes a bunch of fruit and she combines them all together and you can't even taste the vegetables.

I know who likes vegetables.

Did you know mom was sneaking vegetables into your juice? Juice drinks. Yeah, she puts a whole bunch of vegetables and then puts a whole bunch of fruit, and you can't even tell. Can you believe that?

No.

Oh, I might have told— I might have told Mom's secret. But it's still okay to eat it like that, or to drink your juice like that, because it tastes good, right? And you get lots of vitamins Why did someone pop popcorn? Okay, pay attention now. So you have lots of vitamins. Yeah, and that makes you feel better, right? Yep. And so now when we have our live story, so we talk about how we live now with our new lime ingredient. Did you know lime is also a word for a fruit?

Seriously?

Yeah, a lime is kind of like a lemon. The lemon— a lime, it's green, right?

Yeah.

And it's really, really sour, and it's yummy to put in drinks and stuff like that.

Yeah, but the two, they don't taste as— they taste Sour, sour, right?

But kind of like— yeah, yeah, that's right, they're lemons. Yeah, they're lemons. Okay, so now we're talking about the lime, the fruit, but our new lime ingredient. So like, we put lime in ingredients for drinks to make them taste better, but all by itself it's not good. But the Lyme disease is not good at all. We don't want it at all. But you still have to function in life, right? You still have to do things when you don't feel good, huh? It's hard to do, huh?

And you even gotta do enemas.

Enemas too? Oh, I know. Yeah, not you so far, huh?

Yeah, I'm like the only one in this family that's not sick.

Yeah, well, it's good healthy. Sometimes you got to do things that isn't fun to make you feel better, huh? Yeah, but when you're sick, you have to do things that aren't so fun, like take your vitamins. But sometimes they taste good. Gotta drink your juice. Yeah, yeah, yeah. All right, Lincoln, thanks for coming on the Did you know you're the first kid to be interviewed?

Seriously?

Yeah. And you're the last— you're the youngest kid, not the last kid, the youngest kid in our family. And you often have to go last, huh?

Yeah.

Not this time, you went first. Good job, Lincoln. Talk to you later.

Okay.

All right, wasn't that a fun episode? Those guys, they impressed me with their attitude, and they do have a pretty good attitude most of the time. So thanks for joining us today on Lion Voice. Again, feel free to drop us a note, tell us what you think. If we, if We can dive deeper into the kids stuff if we'd like to. If that's of interest. So again, yeah, just let us know what you think and we'll catch you next time!

Disease is contrary to life. Therefore, wherever disease exists, life must also fight to exist.

Good job fighting, Lyme fighters. Keep it up. We'll see you next time. LymeVoice contains general information about medical conditions and treatments. The information is not advice and should not be treated as such. Okay, Lincoln?

Okay.

The medical information on LymeVoice is provided as is without any representations, warranties, expressed or implied. Okay?

Okay.

LymeVoice makes no representations or warranties in relation to the medical information on this podcast. You must not rely on the information on this podcast as an alternative to medical advice from your doctor or other professional healthcare provider. If you have any specific questions about your medical matter, you should consult your doctor or other professional healthcare provider. And for you, you consult your parents, okay? Okay. If you think you may be suffering from any medical condition, you should seek immediate medical attention. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this podcast. Got it, Lincoln?

Got it.

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