A woman with endometriosis, ME/CFS, and fibromyalgia describes bone-deep fatigue that wrecks her immune system and pervasive muscle pain. She's raised three kids, gone to university, and worked while managing these conditions her whole adult life, though some days she can't keep up the positive act.
I was going to say luckily for me, but it did nearly kill me at one point. But luckily for me, I don't really suffer on a daily basis with my endometriosis stuff. It's more the ME and the fibromyalgia, which for anyone that doesn't, isn't familiar, is characterised basically, the ME is characterised by fatigue. I call it being tired right down to my bones. Like it's, you feel like you're wading through mud. Like it's not just an ordinary level of tired, but it affects your immune system. So you catch every virus. But then your body can react really differently and extremely. So then that can take you a while to get over a virus. And then fibromyalgia is characterized by global pain. So muscle and joint pain, that kind of thing. But it affects all the systems in your body, really. But like I say, I've never been an adult without that. I've raised 3 children with it. I've been to uni, I've got a career. It's been really difficult. But you you can live frightened. I try to be probably too much. I'm probably too dismissive. I'm like, "No, it's fine. I'm fine. It's fine. I have to get on with it." I do struggle, and there are some days when I'm in a hole and I can't maintain the sunny disposition and the.
